Sondie's story

I am 22 years old and I was diagnosed with ENDOMETRIOSIS when I was 16. It all started when I had my first period at the age of 13. A few months after the first period started I had a period that landed me in the ER. The reality is doctors will tell you that period pains are normal. Three years after going from one gynaecologist to another I was diagnosed with Endometriosis Stage 4 via a laparoscopy. Being diagnosed with endometriosis at that age was the worst thing ever because as a teen in high school it made my life very difficult. I would miss school for a week or 2 and what I hate most, was having to explain myself.

After the first laparoscopy and contraceptive (Yasmin pill) the Endo was controllable and I had a kind of normal life till when it started to get bad again. When I was 18 and had my second laparoscopy. It was so bad that even medication (Zoladex) made things worse. I had depression because being a student and trying to live a normal life as someone with Endo was the toughest thing. In as much the hormonal medication made my Endo controllable, it also made me go crazy because I would experience all the side effects. At the age of 20 Endometriosis attacked me so bad that I lost weight and I was in and out of hospital, thought I was losing my life. I then had my third laparoscopy and hysteroscopy. I started using visanne after my op.

Endometriosis is a chronic illness, don’t let anyone tell you that it’s all in your head because it is not; you’re the one who feels the pain not those who tell you that it’s in your head. People will judge you; tell you that you’re anti-social and think that you’re faking being sick. LET THEM THINK THAT because the TRUTH is NOT EVERYONE WILL UNDERSTAND THAT IT HURTS SO BAD.



Siphosethu Kakaza (Sondie)
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